The charity has heaped praise on for raising awareness after becoming open about his condition and how it impacts his daily life.
The Scottish singer, 26, issued an emotional statement on Tuesday (June 27) following over the weekend.
A visibily tearful Lewis to finish Someone You Loved for him as his tics prevented him from singing, leading to him apologising for his performance.
Lewis has now shared that cancelling all tour dates for the forseeable future to focus on his physical and mental health.
Speaking to Metro.co.uk, Tourettes Action – a charity leading support and research for people with Tourette Syndrome and their families – reflected on Lewis’s Glasto gig and how the thousands-strong crowd connected with him.
Charity CEO Emma McNally began: ‘The thousands of people watching Lewis perform saw firsthand the challenges people with Tourette’s face daily – pain, frustration, sheer exhaustion – they saw the pain in his eyes, they felt it, really felt it, they stepped in and helped him, the crowd showed true empathy when he really needed it.
‘All we want in this world is acceptance and understanding and the crowds gave this in abundance.
‘That performance right there has brought so much awareness to the condition and for that we are grateful.’
Emma added: ‘Many with Tourette’s have faced stigma and discrimination during their lives, so to see Lewis be fully accepted and embraced by the crowds was amazing, it gave so much positive reinforcement to the community, they felt accepted.’
On Lewis’s announcement that he’s taking time off from touring, she said: ‘Lewis has nothing to apologise for.
‘He can hold his head high and feel proud for what was such a moving and inspirational performance that has touched so many and will go down in Glastonbury history.
‘We hope he now takes the time to look after himself and reach out for support if he needs it.’
Also moved by Lewis’s openness with his TS is Genna Barnett, a trustee of Tourettess Action.
Genna was diagnosed with Tourette’s aged seven and is now 32.
She said it is ‘incredibly emotional’ for her to see a celebrity with such a big platform speak about having the same condition as her.
‘I’m so grateful for him for speaking out about it,’ she praised, having spent the ‘vast majority’ of her own childhood feeling ’embarrassed’ of her tics.
‘It’s only in recent years that I’ve started not only accepting my TS, but embracing it as a huge, and brilliant, part of who I am.
‘The awareness that Lewis has brought to TS and what it means to live with the condition, and helping to smash the stigmas associated with it, is absolutely massive for our community – and will hopefully play a huge role in helping others to feel proud of who they are, and not ashamed like I did for so many years.’
Lewis – who previously admitted if his mental health continues to worsen – said that cancelling his upcoming shows was the ‘most difficult decision’ of his life.
In his lengthy statement, the Wish You The Best hitmaker said it ‘means the world’ to have received such support after struggling over the weekend.
He had hoped that taking would allow him time to get back fighting fit. However, he is still ‘learning to adjust’ to the impact of his Tourette’s.
‘I’m so incredibly sorry to everyone who had planned to come to a show before the end of the year but I need to feel well to perform at the standard you all deserve,’ Lewis concluded in his heartfelt message.
‘Playing for you every night is all I’ve ever dreamed of so this has been the most difficult decision of my life. I’ll be back as soon as I possibly can.’
